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Balancing the multiple illnesses

A recent New York Times article discussed the challenges of treating someone with
multiple health problems

Since I'm going through yet another work-up which isn't about my pain but is somehow related in my uneducated opinion, this article struck a chord with me. No twenty-something female wants to be compared to statics about senior citizens. While I definitely respect my elders, I wish I could just be like my peers and not in so much pain, so anxious, fatigued and nauseated. And the more time goes by, the more conditions I end up with.

The thing is, it's not like any of my health problems exist in a vacuum. The anxiety and depression are caused by the pain, but they also amplify it. The thyroid problems make me tired, which makes it harder to deal with the pain. The pain has always influenced my nausea, but the pain makes every test that we do as part of working up the nausea harder. The vibration of the MRI was painful, the endoscopy tomorrow scares me because of the fear of RSD spread from something as simple as an IV insertion, I don't even know if the RSD could spread from trauma related to biopsies if they find abnormal tissues. I'm even concerned about the fact that I'll have to lay on my left side, which is the side that my RSD is on.

Sometimes, even most of the time, being stuck with so many medical probllems seems so unfair. And, to be honest, when I see articles like this one discussing the topic of multiple medical problems, I feel overlooked. I know I'm not the only one who's young and sick. On the other hand, I do feel hopeful that the more people like who are young and dealing with chronic illness who share their stories, the better things will get. We all learn from each others' experiences and we other people learn from us too. The power of the blog can't be denied. It even helps me tonight as I write about my fear and frustration.


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Mar. 31st, 2009 05:05 am (UTC)
I completely agree. Health articles usually deal with senior citizens, and rarely mention those under 40. I hate all the health and diet and exercise articles that stress how important it is to be active, but then never address the issue of how to be active if you're disabled in any way. Seriously - if you can't walk, how are you supposed to walk at a moderate pace for 20-60 minutes a day?
Apr. 8th, 2009 02:28 am (UTC)
Yeah, I know. I wish there was more practical information about illness that could actually be applied to my life instead of the stuff which says "you should be eating better" for example. I'd love to eat better but I don't want to eat at all, so I eat what I can. I think it's going to take a lot of us speaking out and asking for better resources to get what we need.
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