Log in

No account? Create an account

Previous entry | Next Entry

Why do we tend to confuse independence with doing the most socially normative thing? And why is social normativity considered the most positive way to be. I realize that the wording I'm using isn't correct, but I'm too tired to think of the right terminology.

In social work, we watched a video documentary that portrayed a young woman with autism. She used facilitated communication to communicate. She is able to speak, and does so to an extent. One student commented that where she works, they would work with her to have her speak, not use facilitated communication. Maybe I'm comparing apples to oranges, but why is speech so much better than facilitated communication? Or, put another way, why is it necessary to only use a cane (or dog), and not choose what works best for you?

I find it much easier to talk about this with blindness, and much harder to draw parallels to other areas of life. But it makes me nervous to make blanket decisions on what a person should do, just because they can. It might be socially normative to drink on one's twenty-first birthday, but it is clearly not a good option for me with all of the medications I'm on.

Not sure where this is going. I'm entirely too tired...


( 3 shots of espresso — Add a shot of espresso )
Mar. 6th, 2007 12:23 pm (UTC)
I just saw a video of a woman with autism who used assistive communication. What she made clear was that she tended to think in visual symbols. For her, augmented communication devices were preferable because it was far easier for her to think in symbols (including typewritten responses,) than it was for her to think in terms of speech sounds. Your friend may allow the autistic person to fit into society, but the technique, speech, may be so difficult for the autistic person to use that she may withdraw more.
I chose not to go to nfb training centers because they use training methods that are not compatable with my way of learning I love acb because they take people and their skill sets, and work with them from where they are. I hope as a social worker, you would do the same. From the tone of your last entry, I ahve no doubt you will.
Mar. 6th, 2007 03:10 pm (UTC)
This kind of reminds me of doctors or parents of deaf children who say that they're not going to use sign language because it's a speaking world and their child is going to learn to speak. They're doing a major disservice to the kids who don't have the chance to learn to sign and really become better at communication. i guess the same can be said of parents and teachers who have stopped teaching braille in the classroom to blind students because computers are a better option. Hey, i love my computer, but what happens if someday that computer goes down? Okay, so I'm rambling now, but it just really bothers me when people don't consider all options as viable.
Mar. 23rd, 2007 09:54 pm (UTC)
I've seen this happen a lot with medical responses to disability. They're so focused on an ideal of normal that they don't even discuss what feels best, is most effective, and leaves the person with energy to get through the day.

Some examples: My sister had epilepsy as a young child, with the big seizures, called "grand mals," back then. They had a really difficult time finding a mediation that worked for her, and in fact settled on one only experimentally approved at that time. But then they blasted her with these barbiturates to make sure she had no more seizures. And she was this little girl on drug highs and lows all day through most of our childhood. I think less drugs and a slightly bigger risk of some seizures should have been considered. As a teen my sister could not get medical consent to wean off the drugs and see how it would go. She ended up doing it on her own, and hasn't needed those drugs in twenty years now, but would never had known that if not for "disobeying" doctor's orders. She would also not have been able to complete her education and get the great job she has now while addicted to all that stuff.

For myself, when I started using a chair in ninth grade, I got tremendous pressure from medical professional and, oh, like my friend's parent, to try to walk again. My friend's parent said I was lazy. Really, I was so relieved to be getting around on wheels and not spending every waking moment obsessing on how I would get from point A to point B all day.
( 3 shots of espresso — Add a shot of espresso )


Latest Month

November 2018
Powered by LiveJournal.com
Designed by Lilia Ahner