Nickie Coby (puppybraille) wrote,
Nickie Coby
puppybraille

Choking on Chicken Soup

I can't decide what to think of this. I got an email from a friend about a book in the Chicken Soup Series that says it's for "the special needs soul". I deeply appreciate the fact that she sent it to me, because it might be an interesting opportunity. I've got several thoughts running through my mind, and before I rush to a conclusion, I want to write and see what I come up with. I'd really welcome some feedback from others on this issue. Even if you and I don't agree on the issue, i'm interested in what you have to say.

On one hand, I really do not want to be "inspirational". I kind of prickle when I hear that adjective. I'm not inspirational. Look at all of the stupid things I do. Look at all of the struggles I deal with and how frustrated I get. I'm not making a difference like Mother Theresa or Martin Luther King JR. I'm just Nickie. My blindness is so much a part of me, I feel like it's like me saying "Wow! You're so inspirational! You have a belly-button. I see it as part of me. It's not good, it's not bad, it just is. I know that God has used it. I just don't think I do anything extremely special. I'm me. I can't be, and don't want to be, on a pedistal. What if I fail? I know i will. I'd rather have people look to God than look to me.

So, I have a hard time with a whole book about disability as an inspiration. But I think this book could actually be very helpful. Not everyone is at the stage where they're comfortable with their disability or the disability of someone close to them. How are they supposed to doo this? How will they learn without the help of mentors who have disabilities. If we, as people who have disabilities share our stories in a way that helps people see that our disabilities are not something to fear, we may actually help someone deal with these issues. I've come across several people who I can tell are afraid of blindness. They can't understand why I think RSD is worse than blindness. This may be a chance to share with them and help them deal with that transition.

I don't know if I will write for this book. I am very interested in submitting something. If I don't share my perspective on disability, who will? It takes a lot of people doing little things to make a difference. I wonder if this could be a chance for some of us to make a difference in the lives of people with disabilities who don't have positive role models. If we don't speak up, who knows who will?

Tags: chronic pain, disability related, faith, guide dogs, health, hope, reading, rsd sucks
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