Nickie Coby (puppybraille) wrote,
Nickie Coby

A better update

One of the things I didn't expect when I got excited about going to college again was the extreme tiredness/exhaustion I feel. I am happy here, but very tired out. I feel like it should be at least 9 PM, and it's around two. I woke up at 6 (again!), after not falling asleep until after midnight. This is not healthy for me, and it's not even close to what I need to function. Then, there's the stresses of learning the new dorm, sharing a bathroom, finding the bathroom, actually walking there (it feels like a long hallway) and everything else that's involved. I haven't even tackled the cafeteria yet, and I'm kind of afraid to. Standing for any length of time is very painful right now, and I don't know how else to handle the cafeteria. Not to mention that uone can't carry a tray with a support cane and guide dog and still use the support cane.

I've been waking up with the pain that causes nausea, but have regained my ability to eat and drink easily, which is good. I've also been able to manage Julio's needs, which I needed help with last summer. It is a challenge, but at least I'm still functioning on that score. I've also seen a friend I didn't expect to see, and made a few connections with others. I have several friends on my floor, and people are helpful in finding what I need.

It's like coming home after a long trip. I know a lot of people here, and it's such a comfortable place. I'm happy to be back, but I'm finding that just taking care of myself takes a lot of energy. I don't have nearly as many spoons as I'd hoped.

In better news, my R.A. is cool. She emailed me information she posted on the floor (well, the walls on our floor). She's been very helpful. Having a shower chair is a very good thing too, I just have to learn to check which way the shower is spraying. My underware fell on the floor and got soaked. Do you know how embarrassing it is to walk back to your room like that? It probably looked like I'd peed myself! For the record, I did not wet my pants through any bodily function.

I really do like it here, I just needed to write out my frustrations.


Tags: chronic pain, college, health, hope, personal entries, rsd sucks, sleep

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