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Sleep or lack there of.

This is starting to get very frustrating! I fell asleep on the futon around 9:10:20 or so, mom got me up to brush my teeth around 11. Then, I couldn't get back to sleep. At last check, the clock said three. Then I woke up around 9. My foot was very angry, more from RSD than surgery pain. I can't use lidoderm because I'm wearing the cast. I'd like to cut back further on the medication, but can't seem to do it yet because of the pain. At least I have a pain clinic about two weeks from yesterday. I will definitely bring this up, especially if it doesn't get better by then.




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Jun. 7th, 2006 10:15 pm (UTC)
crave sleep
Sleep is such a fleeting thing in the life of many an RSD'er. We all need to get a good rest in order to face another day and fight the pain. In my case - sleep is not cumulative; once it's lost - it's lost. My doctor has given me good trial-medications via samples: Ambien, Sonata, Lunesta and Ambien CR. With these sleep-inducers; I'm guaranteed a solid block of down-time. Fortunately, I have them at the ready. There is no need for me to toss/turn and get mad because I just can't fall asleep - I did that for years and discovered that it's silly to suffer. Nickie, please take the medicine if you need it.
Jun. 8th, 2006 01:57 am (UTC)
Re: crave sleep
I'll definitely be bring this up with the doctor. I'll try to keep the pain down for now, and hope we can come up with a medication or something to help soon. Thanks for the suggestions and for understanding! I wish neither of us had to understand these things though.
Jun. 8th, 2006 06:20 pm (UTC)
sleep deprived
I'm just lucky to have physicians who "listen" - I'm, in fact, blessed in that regard. The pharmaceutical reps come by my doc's office and leave goodies - like coupons! I always ask. So far, I've received 7 Sonata capsules in a trial offer, 4 Ambien CR and 4 Lunesta! Alone, the Ambien CR tablets are $3.61 each and Medicare doesn't allow. The samples are a sanity-saving service. The doctor has me fill in my part of the coupon and she attaches a regular prescription for the amount - be it 3, 4 or a week's worth of the medication. The pharmacy receives the payment directly from the supplier and I get my stuff for FREE. I just don't want you to go through such a tough time, Nickie. In having RSD since 1993 - I've 'lived' quite a bit. It's great to have the system work FOR you instead of against you. Sleep is critical with this disease - I need strength to go on; we all need strength to go on.
Jun. 9th, 2006 12:44 am (UTC)
Re: sleep deprived
I know sleep is critical, unfortunately from experience. I'm wondering if we can't up my anti-depressant (which seems to help some with the pain). It's definitely getting brought up. I know what happens if I ignore problems, and don't want to go back to sleeping 3 hours or so a night.

We got a trial offer for Lyrica, and that helped a lot. I mootch off my parents' insurance until I graduate from college, but every bit of money-saving helps a lot!

That's a lot of money per capsul! I'm glad you are able to get the trials. And even more glad that your doctors listen. I'm very very fortunate in that regard as well. Mine take great care of me. They have gotten to the point that they know that they have to be very verbal, so I know whether they are writing or something, not looking at me like I'm an idiot. Communication is so important! Here's hoping we both get enough rest tonight!
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