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Doctor's Appointment

First, let me say that I appologize for not telling anyone specifically what happened if I said I'd call you or let you know.
I have RSD. It's official. I did not cry which was very very very good. That would have been the third time I cried in front of this particular doctor. Both times previously were when he told me I had to have a lumbar sympathetic block.
I created a sheet which listed my symptoms, medications I'm on, medications I'm allergic to and Neurontin stuff and why I want off. That really helped and he liked that I had it. I was so concerned that it would appear too assertive. It's really aut of character for me to actually do that. But everyone involved seemed to appreciate it. I'm so glad I did it. This doctor is excellent. He really takes the time to listen to you not just about your symptoms but about life in general. I haven't laughed so hard in a while. Maybe that will bring my blood pressure down... I am trying to change my response to stress, but it's not happening as quickly as I'd like. Wait, that right there is the type A thing again.
Anyway, he really did not like what he saw with the foot, he called it purple elephant foot. There was at least a 2 degree difference (in celcius), and the left foot was the much colder of the two. So we're going to continue injections, I'm going back on the Celebrex, starting something called Lyrica and getting off of the Neurontin. He said he didn't see any options as far as surgery. It's a necessity most likely, but he doesn't make that decision. But he will tell the poediatrist I work with to go ahead and do surgery if I need it. He said something interesting though. He said that doing a nerve block is the best choice if I have surgery. This is good, maybe I can stay awake.
I don't need to worry about using Lidoderm every night if I need it. It's actually a good thing.
Like I said, this doctor is excellent and cares about his patients. I am confident that he will help me get through this.
He said that attitude will help a lot. I told him I tend to get mad at things that sand in my way. He said that's good. So now, I'm trying to fight the urge to feel melancholy. I am trying to be positive about htis and trust God. He is the ultimate one that can get me through this.
I'm definitely tired and I want it to be 7 so I can put on a patch. The pain is higher this evening.
I'll probably go to dinner some time soon. I feel like being alone may be a bad choice but I really want to sleep.
All in all, not what I wanted to hear. But I at least heard it in a positive way.
Hugs!
Nickie

Comments

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3kitties
Nov. 23rd, 2005 12:02 am (UTC)
your appointment and Lyrica
I'm sorry about the RSD dx but at least you have an answer.

On another note, please let me know how you do with the Lyrica. I'm sort of watching people's responses to various meds like this since I respond well to antiepileptics that affect gaba. I haven't tried Neurontin yet--it's probably next on the list if Topamax ever stops working for me.
puppybraille
Nov. 23rd, 2005 10:46 am (UTC)
Re: your appointment and Lyrica
I'll definitely let you know how i do on the Lyrica. Also, don't let my experiences on Neurontin bias you. They were bad, but I seem to be affected by drugs in weird ways. I'm pretty sure you know that already.
It's good that we know what it is and can fight it... I'm praying that your meds work well and that things go well for you.
hurricaneamy
Nov. 23rd, 2005 05:26 am (UTC)
i'm praying for you. Big hugs. Hold onto Jesus.
I'm glad you were able to hear it, and recognize where things stand. I'm so glad you wrote that list of things and brought it into him. That's the best thing you can do sometimes, and even if it's not how you typically are, good job.
Praying these new meds, and any future treatment and the possible surgery will help you. Hugs!
puppybraille
Nov. 23rd, 2005 10:48 am (UTC)
Yeah, I htink I'll definitely do that list again at all of my important appointments. It worked extremely extremely well. Thank you for the prayers! I really appreciate them!
amm_in_paris
Nov. 23rd, 2005 10:41 am (UTC)
Hugs. At least you know what you have, now, after all the time. It's good you did the research. I hope they can find a way to keep it from hurting. :-)
puppybraille
Nov. 23rd, 2005 10:52 am (UTC)
I think they can find ways to stop the pain. The good thing is that they started treating me early. Getting the injections and all of the meds early on a just in case basis was extremely helpful. Now, the goal is just to keep being aggressive. I beat this when all of this junk started. It's possible to beat it again. Thanks for the hugs!
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